Lupus suffers are often the masters of disguise, in our own little world what we say or do is not exactly what we mean.. and perhaps sometimes neither do others in our lives..
Thursday, 14 November 2013
Tuesday, 12 November 2013
Tis (almost) the season to be poorly..
As I looked out of the window yesterday morning at the first frost on the cars, it yet again reminded me that the worst of the winter months are yet to come, along with the busiest and most exhausting times at work. The times I'll need all the strength I can get but will have my energy tested to the limit with bugs, germs and aching bones from the cold.
Saturday, 9 November 2013
A Poem for my darling daughter Claire
A Poem for my darling daughter Claire
I remember the day you were born, it feels like yesterday
I looked into your beautiful face, you took my breathe away
I promised to protect you and love you your whole life through
Because you are my daughter, it’s what mothers do.
Friday, 8 November 2013
The Incredible Power of Denial..
For today.... a few words from my husband.
It's early Febuary 2011, early evening. I'm stood in the back yard of the small terraced house me and Claire rented. The same terraced house I had proposed to her in on Christmas day, just over 12 months ago. It's five months until the wedding and Claire isn't there, she's in hospital.
Thursday, 7 November 2013
thursday turd-day
Absolutely exhausted so here's todays post in the format of my boring lupie day ( well hey it's a break from the drivelly moany stuff - I've got lupus, I feel tired, blah blah blah!)
Woke up at 7.38am despite the opportunity to lie in til 8.15 (flexi hr day at work)... somebody in the night clearly ripped me out of bed, threw me downstairs, made me run on a treadmill for an hour and punched me in the mouth. So as per usual woke up feeling like a bloody superstar with a burning cold sore - feel long hot shower is the only solution, did not
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