Hair Raising Awareness

While i'm neglecting my blog writing, lupus advocate awareness duties for NanoWrimo this month I thought i'd quickly pop in and say hi and post the video of my husband Mark shaving off his beloved golden locks for Hibbs Lupus Trust here in the UK.  My husband loves his hair very much, third only to me and the cat and it's seen various formations over the thirteen years i've known and loved him (naw! i know) so a precursor to his epic head shaving (which raised over £300 by the way) a few hairy (or hurrry as Mark would like to say in his Lancashire tongue) pictures of Mark from over the years as an ode to his sacrifice.  Keep scrolling for the video!

Keeping up appearances

Lupus patients can be the most stubborn people on the planet, myself included. Notorious for not necessarily taking the best advice, making the most of any sort of energy - even if it means we're twice as tired at the end - refusing to accept ourselves as different and cherry picking when our condition should be taken into consideration for our actions or circumstance (chronic patient prerogative).  Not all necessarily bad things, if anything it gives us a sense of balance in a life that is slightly off kilter.