Showing posts with label mycophenolate. Show all posts
Showing posts with label mycophenolate. Show all posts

Tuesday, 2 September 2014

Changing lanes


If past three years have taught me anything, then I'd have to say it's the ability to become highly adaptable. Life doesn't stay the same for anyone for too long, but with lupus you learn to live life not so much on a knife edge, but with eyes in the back of your head prepared for any sudden change, whilst at the same time looking forward to what is normality.  Less life in the fast lane and more life facing the on coming traffic.
These past few weeks again have given me the opportunity to use my chameleon like powers of adaptability and begin some new adventures on a different medication.
For multiple reasons my consultant and I have decided to put me on the slightly friendlier drug Azathioprine. Easily done yes? No.

Wednesday, 30 July 2014

Shade Hopper

Yes, I'm still alive (just about in the form of lupie torture that is is this heat!)
Whilst blog activity has been minimal and absence notable, it's a far cry from my daily, non-cyber related life.
So this month has been eventful to say the least, not including all the additional calories burnt hopping like a mad hare from one side of the road to the other to find the smallest glimpse of shade to walk in. I've also been making sure I remain permanently glow in the dark by applying industrial strength and ridiculously expensive factor 50 sun cream to my entire body everyday (the price we have to pay to stay the colour of a milk bottle) or as my 84 year old Grandad summed up last week in his concerned voice "ooooh, you're very pale aren't you".
My medication has changed too, the remnants of my final Myfortic prescription has been very excitedly shoved right to the back of my overflowing medication box and a box Azathioprine sat pride of place in what is vastly becoming a home  pharmacy. The downside, my poor veins hammered in weekly blood tests to check I'm tolerating it and my kidneys aren't going haywire again. More adventures on this coming shortly.