An open letter to Lupus

Dear Lupus,

We've lived together for nearly five years now, our cohabitation uncompromising and you, the uninvited guest illegally squatting in my world, my safe haven.

For all those New! faces

A very good morning to everyone today.  I know it's unusual, me being such a busy and tired little lupie and all,  for you to find a blog post from me so soon.  There are a few simple reasons for this.

Keeping up appearances

Lupus patients can be the most stubborn people on the planet, myself included. Notorious for not necessarily taking the best advice, making the most of any sort of energy - even if it means we're twice as tired at the end - refusing to accept ourselves as different and cherry picking when our condition should be taken into consideration for our actions or circumstance (chronic patient prerogative).  Not all necessarily bad things, if anything it gives us a sense of balance in a life that is slightly off kilter.